Lobbying organisation

Amyotrophic Lateral Sclerosis Society of Canada

42 meetings with public office holders, May 23, 2025 to Jul 8, 2026.

327 meetings on record since 2009, their first on record.

Meetings over time

  • May 2025: 1 meeting, with Peter Fragiskatos
  • Jun 2025: 1 meeting, with Peter Fragiskatos, Marie-Hélène Gaudreau, Judy Sgro, Annie Koutrakis, Zoe Royer
  • Jul 2025: 2 meetings, with Kiren Dar, Shelley Kulperger, Fares Al Soud
  • Aug 2025: 1 meeting, with Bryn Savage
  • Sep 2025: 1 meeting, with Leslie Church
  • Oct 2025: 21 meetings, with Dr. Patricia Conrod, Dr. Jane Rylett, Sandenga Yeba, Bryn Savage, Fraser Tolmie
  • Nov 2025: 3 meetings, with Peter Fragiskatos, Marie-Hélène Gaudreau, Ernie Klassen, Kurt Holman, Ritu Banerjee
  • Dec 2025: 0 meetings
  • Jan 2026: 0 meetings
  • Feb 2026: 0 meetings
  • Mar 2026: 3 meetings, with Burton Bailey, Wendy Shearer, Vanessa Sung, Mona Nemer, Doug Eyolfson
  • Apr 2026: 2 meetings, with Mary Nicholson, Peter Fragiskatos
  • May 2026: 2 meetings, with Alana Hirtle, Alexa Kalsatos, Abina Mohanarajah
  • Jun 2026: 4 meetings, with Chris Malette, Peter Fragiskatos, Marie-Hélène Gaudreau, Ziad Aboultaif, Elizabeth May
  • Jul 2026: 1 meeting, with Bryn Savage
May 2025peak 21 in a monthJul 2026

Hover or focus a month to see who was met.

What they lobby about

The registry's own subject categories, chosen by the lobbyist on each filing. Each one opens its own page.

Who they met

Bloc1 met · 3 meetings
Green1 met · 1 meeting
Not in Arena's member list17 met · 21 meetings
  • Bryn Savage
  • Manuela Tomic
  • Rodrigo Arancibia
  • Abina Mohanarajah
  • Alexa Kalsatos
  • Amelie Vezina
  • Ana Ludke
  • Anne Decrouy
  • Caroline Petit-Turcotte
  • Christine Lefebvre
  • David Wells
  • Dr. Jane Rylett
  • Dr. Patricia Conrod
  • Emma Spreekmeester
  • Justine Frame
  • Kiren Dar
  • Mackenzy Metcalfe

The 40 most-met of 53 people named in these filings.

House of Commons (42) · Health Canada (HC) (9) · Innovation, Science and Economic Development Canada (ISED) (8) · Veterans Affairs Canada (VAC) (2) · Canadian Institutes of Health Research (CIHR) (2) · National Defence (DND) (1)

In their own words

  • To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined.
  • To provide funding for neuromuscular diseases, one of which is ALS, with regards to reinstating funding from the government to help fund researchers in the neuromuscular field. Sources of funding are to be determined.

Meetings from the Commissioner of Lobbying of Canada. Canada does not require lobbyists to disclose what they spend, so there is no lobbying budget to report here — only the meetings they filed.