Lobbying organisation

RAREi - The Canadian Forum for Rare Disease Innovators

6 meetings with public office holders, Oct 1, 2025 to Apr 22, 2026.

102 meetings on record since 2018, their first on record.

Meetings over time

  • Oct 2025: 3 meetings, with Tom Kmiec, Daniel MacDonald, Sandenga Yeba, Justine Frame
  • Nov 2025: 0 meetings
  • Dec 2025: 0 meetings
  • Jan 2026: 0 meetings
  • Feb 2026: 0 meetings
  • Mar 2026: 0 meetings
  • Apr 2026: 3 meetings, with Manuela Tomic, Justine Frame, Dan Mazier
Oct 2025peak 3 in a monthApr 2026

Hover or focus a month to see who was met.

What they lobby about

The registry's own subject categories, chosen by the lobbyist on each filing. Each one opens its own page.

Who they met

Conservative2 met · 4 meetings
Not in Arena's member list4 met · 6 meetings
  • Justine Frame
  • Sandenga Yeba
  • Daniel MacDonald
  • Manuela Tomic

Health Canada (HC) (5) · House of Commons (4) · Innovation, Science and Economic Development Canada (ISED) (1)

In their own words

  • Federal programs and budgetary initiatives related to the Federal-Provincial-Territorial funding arrangements regarding pharmaceuticals including any health technology assessment-related or other policy discussions that might involve Health Canada and its ongoing relationship with Canada's Drug Agency and/or other pan-Canadian health organizations.
  • Innovation, Science and Economic Development Canada regarding the Innovation and Skills Agenda and other government policies and programs related to incentivizing research and development activities in Canada, including the Biomanufacturing and Life Sciences Strategy.

Meetings from the Commissioner of Lobbying of Canada. Canada does not require lobbyists to disclose what they spend, so there is no lobbying budget to report here — only the meetings they filed.